Purple Butterflies

“I see so many people unsure and scared.”

Hi, my name is Kristine and I am 37 years young lol. When I was a baby I was always sick. I was almost dead several times. I looked as if my parents starved me. My eyes were dark and sunk in. People would ask my mom what was wrong with me. She had no answers. By the time I was 7 all my teeth had rotted out. At 8 years old in gym class my couch noticed a spot in my back that appeared to be a burn in her opinion. So the school called CPS My parents were confused they never even spanked us. My journey of doctors begin. I remember one doctor lifting my shirt and backing up like I was the plaque at 8 years that’s harsh. I cried my mom held me and cried. 200 doctors later 2 states and 8 months I arrived at Texas Children’s in Houston Texas. That’s where Dr Levey diagnosed me with what he called a rare form of lupus. Circleutory sclerederma. Told my parents I would not see my 18 th birthday and if I did I’d be in a wheel chair and never have kids. Well let’s say I like proving Doctors wrong. I am now 37 I have 3 kids (I gave birth to) I have two grandsons. The type I have is genetic non of my kids or grand kids have it. I am blessed. I have been made fun of. Laughed at. And avoided by many. I have surpassed all the doctors said I’d never do. I plan to keep proving them wrong. Well that’s a summery of my story. I hope it gives others hope and know nothing is impossible. I am happy and healthy. And plan to stay that way. ”

Shared by Iva Kristine Owens


*Lupies I thought this would prove an excellent testament that there is hope! That we can live long lives and overcome the odds stacked against us.

Good Afternoon Lupies,

I love stumbling across little gems. People and stories we often overlook and skip over. I found this one, THANK YOU Google Alert, when I went to check my email. I found it to be a treat so I thought I’d share this delight.

“I Won’t Let Lupus Beat Me!”

Read about Jokiva in her one-on-one session with Nakita, who also suffers from lupus, as they discuss the highs and lows of what it means to be a woman living with and fighting the disease.

Nakita is a Lupus Butterfly. She wears her purple colors loud and proud with a mission to inspire other women. And when she met fellow lupus sufferer Jokiva, she knew she was someone special. Jokiva is the founder of the popular Facebook group; “The Real Housewives of Lupus,” a group for women with Lupus and […]

via My Story: “I Won’t Let Lupus Beat Me” — BlackDoctor



Good Morning Lupies,

Criss Cari Fernandez is today’s Purple Butterfly. She lost her mother to Lupus complications on Jan. 6, 2016. Criss found she too had Lupus when diagnosed July 2015. She struggles with inflammation in her hip that prohibits her from walking. But, even though Criss says she’s in the worst pain ever, she still manages to smile and “keep it cute” (check out her purple hair).

Remember to keep Criss lifted up in prayer my fellow lupies, as she embarks on this new but difficult journey that is Lupus. Take a minute out of your day to watch Criss’s emotional video below. #LupusAwareness!


Good Morning Lupies,

Purple Butterfly Christine G. is unstoppable! She remains active despite Lupus trying to stop her dead in her tracks. She has participated in more than 20 Obstacle Course Races in 2015 and has plans to run more in 2016. She sets out to put Lupus in its place despite the toll it takes on her body from day to day. Christine has taken her life back and has not let Lupus define her. I hope her story encourages you all to Never Give Up!

“I had proven to myself that Lupus would not hold me back/define who I am.”




Good Morning Lupies,

Purple Butterfly Deitra Songstress Dean is confident despite the toll that the disease has taken on her appearance and her life. She manages to smile and elude beauty. Deitra has taken her life back and has not let Lupus define her. I hope her story will encourage you all that you are beautiful and that this disease cannot and will not get the best of you. Keep smiling.

-Have a great day!




Good Morning All!

Lupies, remember to take each day for what it is. Positive attitudes and positive thoughts make for a positively good day! Just thought I’d share with all of you an amazing testimony via a young lady I stumbled across on Facebook. I hope the story of this purple butterfly gives you all hope just as it has given me hope.