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Dear Lupus

Dear Lupus,


Why must you wreak havoc on my hair? As if my body doesn’t suffer enough beatings from you, you had to go and pick on my hair too? Why must the gentle stroke of my hair from my brush turn into fit of hair fall?

My bathroom is nicely decorated with zebra print and zebra fur rugs and I don’t necessarily think that the large amounts and black and brown clumps of hair laid out sporadically adds to the pizzazz.

Dear Lupus,

Single strands, hair balls, clumps of hair…. it’s a never ending thing. Must I experience so much hair loss? At this point I am practically bald!

The scalp at the center of my head is as clean as the inside of my hand. It’s so embarrassing!


image from the lupus awareness Facebook page

Dear Lupus,

Could you make room for my hair to grow back so that I won’t have to walk in shame?

Could you make room for my hair to grown back so that I won’t have to walk in fear?

So that I won’t have to live in paranoia that someone would notice that the hair piece I am sporting today is really not my own, but in fact a wig?

Could you make room for my hair to grow so that I won’t feel self conscious about the next individual who has to touch my hair?

Dear Lupus,

I would love to have ALL of the hair you stole from me. I would love every strand you’ve ever forced to break off and exit my hair shaft! I would like every hair ball, hair clump and bit of hair that has ever left my head to return back to me.



Home · What Is Lupus?

Lupus And Sun Sensitivity

Hey Lupies,

Summer is here and it’s imperative that we take precautions to reduce the effects of sun exposure.

About two-thirds of the people with lupus are UV light-sensitive. Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light.

Sunlight may cause also a lupus flare, resulting in fever, joint pain, or even organ inflammation. Each person with lupus may have a different level of photosensitivity – just like in the general population.

Try the helpful tips above to make this summer a successful one :)

For a future with #nolupus we must first get to #knowlupus!


This Friday: Put On Purple Day 

POP Day is an annual part of lupus awareness month where people wear purple and buildings and other landmarks are illuminated in purple light to help call attention to the impact of lupus. 

Join the lupus foundation and get your family, friends, team members, and coworkers involved for this year’s event!

For a future with #nolupus we must first get to #knowlupus 


Did You Know? 

It’s crazy the impact that lupus has on the individuals it takes hold of.

Who would’ve knew that factors such as your economic status could play such an increment role in the way that lupus affects not only yourself but your body as well?



For a future with #nolupus we must first get to #knowlupus!


Happy Mother’s Day Lupies!


Wishing all of the mother’s battling lupus a HAPPY MOTHER’S DAY! You all are such stong cookies! It’s one thing to be a mother, but it’s a totally different ball game for those of us who are mothers and lupus warriors!

“You never know how strong you are until being strong is what you have to be.”

For a future with #nolupus we must first get to #knowlupus!