My Fight

2015-10-25_22.09.23-1 Hello,

Welcome to my page. First things first. I’d like to formally introduce myself. My name is Na’Keevia and I am a single mother with LUPUS, residing in Miami, FL.

Before I was diagnosed with Lupus in 2012, my joints and muscles ached so severely that I could barely get out of bed to tend to my then three-year-old son. I found it rather odd as I have always been a very active individual-being a competitive cheerleader since the age of 5. My face also began to break out in unexplained rashes and I was extremely sensitive to heat. And I LOVE the heat (the sun, the beach, etc). But whenever my skin would come in contact with heat of any kind- the sun, hot showers, a Jacuzzi, etc., spots would begin to form all over my body, then fatigue spells would follow shortly thereafter. My hair started to thin out gradually and then fell out excessively. It was a HUGE red flag and I became quite concerned because I took great pride in my hair. It was always long and healthy. I eventually ended up shaving all of my hair OFF because it became patchy. To make matters worse, I had to go through all of this alone. I was living in Tampa at the time of my diagnosis while my family and friends were miles away in Miami.

Eventually, I mustered up enough strength to go see a doctor. One visit turned into months of seeing a doctor, months of being given tests and months of becoming quite acquainted with the Quest Diagnostics staff. I was given the final batch of routine blood tests in June 2012 and then an ANA test that came back positive. The results of the ANA was the final puzzle piece to helping me figure out what was going wrong with me. The day I was diagnosed with SLE was shockingly, to say the least, the best day ever! The diagnosis put a stop to my questions and concerns. All the questions I had been harvesting for more than a year had finally been answered. I could finally treat what was causing me so much pain and strife.

Fast forward to now, 2016, I am back home, living in Miami. I see an excellent team of doctors and specialists who ensure I am in tip top shape. I see a Rheumatologist in the Hollywood area, who assists me with my joint pain due to RA, a Dermatologist that helps me keep my rashes to a minimum and is aiding me in growing my hair back due to lupus hair loss. I also see a Pulmonologist to keep an eye on the Pleurisy that continues to develop in and around my lungs, as well as a Nuerologist to ensure there is no progression of the Cerebellar Tonsillar Ectopia that was discovered on my brain MRI last year.

After having a major flare up months back, that left me in the hospital for quite some time, I now try to keep my Lupus under control by taking my medication (plaquenil 200mg 2x a day and prednisone 45mg) and eating healthy (plant based diet, gluten and dairy free). I do what my physicians instruct me to do in order to remain in good health for my son. And it’s been working well. I am able to do some, not all, of what I use to prior to the Lupus and for me that’s progress.

I have been a lupus advocate since my diagnosis. Since, I have created a lupus blog page called My Lupus Fight|Flying Above Lupus and I’ve participated in walks all over the state of Florida. I attend the Lupus support groups and the wellness seminars. This year I am getting more involved with the Lupus Foundation of America, Florida Chapter. I was the team captain of my team of 15, for the Walk to End Lupus Now in September, and I have formed a team this year as well,with family, friends and co-workers, who are walking to help me and all of the other Lupus sufferers find a cure. With the help of my doctor’s and the support from my family and friends, I have been able to keep a positive attitude about my life with lupus.
2015-10-25_21.30.14

20 thoughts on “My Fight

  1. Wow! Never heard of it till now, I wish you continuous recovery, and you can even set up a charity to help those going through the same struggle like you and share your optimistic attitude. Well done!

    1. Sadly, a ton of people have no clue what it is. That’s partly why I chose to start up this blog. I want to make as many people aware as I can. And thank you so much for the well wishes.

  2. Very touching story. You are brave and well done to you for that, not letting it get to you. Amazing very amazing. Let the universe and the supreme light – heal you . I can not say I understand what your are going through, but you are definitely brave in adversity. Wishing you the very best and all the miracles in the world land on your door step.

    1. Thanks so much for reading my story. And I really appreciate your kind words and encouragement. I live life one day at a time and look forward to my healing. Thanks again for stopping by :)

  3. Thanks for visiting and supporting my blog. I am happy to find your sight and see that you are providing awareness and resources about Lupus. In honor of the Purple Butterflies and you, I have posted a post today as a tribute. Again, thanks for your visit.

    1. You are truly awesome! Thank you so much for sharing my page and for posting on behalf of ALL Purple Butterflies. And you’re so welcome :) I really appreciate what you’ve done, it means a lot. Thank you!

  4. First, what a lovely name Na’Keevia :) I’ve never heard of that – where is it from? (it’s normally me who gets asked that)! Secondly thank you for sharing your story :) I’m sorry that you had to struggle on your own as a single Mum but you are so inspirational to be an advocate for Lupus. I love the fact that you have chosen a plant based, gluten and dairy free diet – I truly think that is the way to go to reduce chronic pain and inflammation and the recipes on my blog all follow this healthy style of living (and most recipes are also refined sugar free). I look forward to reading more of your posts :)

    1. Thank you so much! It is a Bahamian name. My mother is from the Bahamas. And thank you so much for taking the time out to read my story. Yes it is a struggle to take care of my now 7 year old, but I make it work the best way that I know how. PLUS it doesn’t hurt that I have an awesome support system. But as far as the plant based, gluten and dairy free diet, OH MY GOSH! It is indeed challenging (I love cheese and ice cream) but I am making it through! I must say though that it gets quite boring. I am looking to spice things up with the foods so I will be looking forward to newly posted recipes :)

      *Sorry for the late response. This comment too was hidden from me.

      1. Its great that you have a great support system :) and hopefully your 7 year old will only get more helpful and wise to your needs! :) Your diet will get easier the more you learn about the wide variety of foods that you’d probably never considered before! :) Cheese and ice-cream are quite easy to replace once you know how! Search ‘feta’ or ‘cream cheese’ and ‘ice cream’ on my blog :)

      2. I think that’s what it is. I am unfamiliar with the variety of foods to consider. I am on my way to check out your blog posts regarding the cheese and ice cream. Thank you :)

      3. Let me know if you need any help with ideas. I eat a lot of chickpeas as they are quick to prepare, nutritious & delicious. Lots of different grains such as quinoa, millet, corn couscous and brown rice. All types of vegetables and fruits as well as lentils and beans and a bit of tofu. :)

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