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No, It Cannot…

A lot of the times I allow lupus to determine what I can and cannot do with my life. I allow it to alter my mood, alter my relationships with my friends and family, and alter the way I go about living my life.

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But long are the days where I allow lupus to steal my joy. No more will lupus control the things that I do. No longer will I allow the way that lupus makes me feel, cause me to make excuses for myself.

“Lupus can no longer take away my faith, shatter my hopes, or lessen my love. It can no longer destroy the true friendships that I have, invade my soul,  or take away my eternal life.”

Lupus won’t conquer my spirit!

 

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Dear Lupus

Dear Lupus,

UGH!

Why must you wreak havoc on my hair? As if my body doesn’t suffer enough beatings from you, you had to go and pick on my hair too? Why must the gentle stroke of my hair from my brush turn into fit of hair fall?

My bathroom is nicely decorated with zebra print and zebra fur rugs and I don’t necessarily think that the large amounts and black and brown clumps of hair laid out sporadically adds to the pizzazz.

Dear Lupus,

Single strands, hair balls, clumps of hair…. it’s a never ending thing. Must I experience so much hair loss? At this point I am practically bald!

The scalp at the center of my head is as clean as the inside of my hand. It’s so embarrassing!

BUMMER!

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image from the lupus awareness Facebook page

Dear Lupus,

Could you make room for my hair to grow back so that I won’t have to walk in shame?

Could you make room for my hair to grown back so that I won’t have to walk in fear?

So that I won’t have to live in paranoia that someone would notice that the hair piece I am sporting today is really not my own, but in fact a wig?

Could you make room for my hair to grow so that I won’t feel self conscious about the next individual who has to touch my hair?

Dear Lupus,

I would love to have ALL of the hair you stole from me. I would love every strand you’ve ever forced to break off and exit my hair shaft! I would like every hair ball, hair clump and bit of hair that has ever left my head to return back to me.

Signed, 

NB 

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Lupus And Sun Sensitivity

Hey Lupies,

Summer is here and it’s imperative that we take precautions to reduce the effects of sun exposure.

About two-thirds of the people with lupus are UV light-sensitive. Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light.

Sunlight may cause also a lupus flare, resulting in fever, joint pain, or even organ inflammation. Each person with lupus may have a different level of photosensitivity – just like in the general population.

Try the helpful tips above to make this summer a successful one :)

For a future with #nolupus we must first get to #knowlupus!

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Together We Can Change It!

As you all know, May is lupus awareness month! Let’s get the ball rolling with fact number one:

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Fact #1

“Public awareness of lupus remains low. Nearly two-thirds of the public knows little or nothing about the disease beyond the name.”

-Lupus In Color

We lupies need YOUR help to change this! Join the growing group of individuals as they help bring about lupus awareness during the month of May.

Get to know lupus!

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The History of Lupus

Did you know???

Lupus can be traced as far back as the author of the Hippocratic Oath- a greek philosopher born in 430 BC, whose chronicles depicted patients with the classic butterfly facial rash associated with the disease.

MORE: Nine important facts about lupus you may not know.

In the 1200s,

  • Rogerius Frugardi coins the term “lupus” a word that comes from the latin word for “wolf”
  • Confusion arises as to why the animal has come to be linked with the condition
  • Some begin to believe the facial rash looks like a wolf’s bite, whereas others believe it bears a resemblance to a wolf’s face

In the 1800s,

  • Austrian doctors Ferdinand von Hebra and Moritz Kaposi, become among the first to recognize that lupus symptoms extended beyond the skin
  • Pierre Cazenave, a French doctor, coins the phrase “lupus erythematosus,” taken from “erythema” the Greek word for “blush”

In the early 1900s,

  • Canadian physician Sir William Osler writes that other organs and central nervous system involvement could be part of the disease
  • Osler recognizes that the disease is “systemic” in that it could affect different parts of the body

In the 1940s,

  • Work at New York’s Mount Sinai Hospital concludes that lupus is a collagen disease
  • In 1949, researchers at the Mayo Clinic discovers that cortisone could be used to treat the disease

Currently, there is still no cure for lupus but there are effective treatments to help patients better manage their symptoms and improve their quality of life.

MORE: Five serious complications that can arise because of an autoimmune disease.

“Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.”

* Find more informative articles about lupus at the lupus news today website…

Sources: lupus.org.uk and medscape.com

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Natural Treatments for Lupus

Lupus is an autoimmune condition that affects the muscle, tissues and organs. Thousands of patients with autoimmune diseases have seen recovery with the following plan.

Supplements:

1. Vitamin D3– Essential for balancing hormones in the body and proper functioning of your immune system. Over 80% of people are deficient in vitamin D3.

2. Collagen Protein Powder– The root cause of lupus is leaky gut syndrome. To repair lupus you must start by repairing the gut.

3. Frankincense Essential Oil– A natural anti-inflammatory. Rub this on your neck and forehead or put 2 drops on your thumb and rub onto the roof of your mouth 2x a day to balance the immune system.

4. Digestive Enzymes & HCL (Hydrochloric Acid)- Lupus is related to low stomach acid so suggested action steps are to eat smaller meals, chew more, add apple cider vinegar and water, and use digestive enzymes (2-3 capsules with meals) or HLC with pepsin.

5. Probiotics– Crowd yeast out of the body and heal the gut.

Diet: Foods that are easy to digest and repair your gut

1. Bone Broth– contains amino acids that repair the gut and boost the Immune system naturally
2. Vegetables (ex. steamed broccoli, cauliflower & spinach)
3. Organic Meats (ex. wild caught salmon & organic chicken) only 4 oz. servings of meat with your meal
4. Fruits– blueberries and raspberries
5. Fermented dairy products – goat’s milk kefir and goat’s milk yogurt are high in probiotics

Lupies find more here about leaky gut and other natural remedies to treat lupus for good! Also, be sure to visit Dr. Axe’s webpage for other helpful articles to get you on your way to looking and feeling better DESPITE lupus.

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Breaking News! 

Data released Tuesday by Aurinia Pharmaceuticals may bring exciting news for those of you living with a lupus-related kidney disease.

Lupus nephritis is one of the most severe complications of lupus affecting the kidney’s of as many as 40 percent of those with this chronic, auto-immune disease.

Image via the Lupus Foundation of America Facebook page

However, in the phase 2b study released Tuesday, nearly half of lupus nephritis patients treated with a low dose of voclosporin (along with standard of care) *achieved complete remission* after 48 weeks of treatment.

Read more about voclosporin and it’s affects on treating individuals with lupus nephritis here.

Image via the aurinia pharmaceuticals webpage

 

 

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A Little Christmas Cheer 

Image via the lupus awareness Facebook page

I thought that Mischa’s story could not only help spread a little lupus hope but bring about some Christmas Cheer also. I don’t know of anyone who doesn’t like to see a crusader triumph… 

See below.

“Living with SLE Lupus, RA & Fibromyalgia. Lupus dx August 1999!! I control Lupus! Lupus does not control Me! I’m finally tapering off Prednisone down to 1 mg for 2 weeks. Then I’m off I’m changing my ways. A life change of healthiness is what I’m looking forward to. I Hate Prednisone it has helped in a flare up but hurt me more! Just wanted to share with everyone. Stay prayed up and healthy. Here’s a healthy Me!! #ihatelupus #findacure #sle #lupushurts #lupusawareness”
Shared by Mischa Myers-Stewart‎