A lot of the times I allow lupus to determine what I can and cannot do with my life. I allow it to alter my mood, alter my relationships with my friends and family, and alter the way I go about living my life.
But long are the days where I allow lupus to steal my joy. No more will lupus control the things that I do. No longer will I allow the way that lupus makes me feel, cause me to make excuses for myself.
“Lupus can no longer take away my faith, shatter my hopes, or lessen my love. It can no longer destroy the true friendships that I have, invade my soul, or take away my eternal life.”
Why must you wreak havoc on my hair? As if my body doesn’t suffer enough beatings from you, you had to go and pick on my hair too? Why must the gentle stroke of my hair from my brush turn into fit of hair fall?
My bathroom is nicely decorated with zebra print and zebra fur rugs and I don’t necessarily think that the large amounts and black and brown clumps of hair laid out sporadically adds to the pizzazz.
Single strands, hair balls, clumps of hair…. it’s a never ending thing. Must I experience so much hair loss? At this point I am practically bald!
The scalp at the center of my head is as clean as the inside of my hand. It’s so embarrassing!
Could you make room for my hair to grow back so that I won’t have to walk in shame?
Could you make room for my hair to grown back so that I won’t have to walk in fear?
So that I won’t have to live in paranoia that someone would notice that the hair piece I am sporting today is really not my own, but in fact a wig?
Could you make room for my hair to grow so that I won’t feel self conscious about the next individual who has to touch my hair?
I would love to have ALL of the hair you stole from me. I would love every strand you’ve ever forced to break off and exit my hair shaft! I would like every hair ball, hair clump and bit of hair that has ever left my head to return back to me.
Summer is here and it’s imperative that we take precautions to reduce the effects of sun exposure.
About two-thirds of the people with lupus are UV light-sensitive. Many experience an increase in lupus symptoms after being exposed to ultraviolet (UV) rays, either from the sun or from artificial light.
Sunlight may cause also a lupus flare, resulting in fever, joint pain, or even organ inflammation. Each person with lupus may have a different level of photosensitivity – just like in the general population.
Try the helpful tips above to make this summer a successful one :)
For a future with #nolupus we must first get to #knowlupus!
Lupus can be traced as far back as the author of the Hippocratic Oath- a greek philosopher born in 430 BC, whose chronicles depicted patients with the classic butterfly facial rash associated with the disease.
“Lupus News Today is strictly a news and information website about the disease. It does not provide medical advice,diagnosisor treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.”
3. Frankincense Essential Oil– A natural anti-inflammatory. Rub this on your neck and forehead or put 2 drops on your thumb and rub onto the roof of your mouth 2x a day to balance the immune system.
4. Digestive Enzymes & HCL (Hydrochloric Acid)- Lupus is related to low stomach acid so suggested action steps are to eat smaller meals, chew more, add apple cider vinegar and water, and use digestive enzymes (2-3 capsules with meals) or HLC with pepsin.
5. Probiotics– Crowd yeast out of the body and heal the gut.
Diet: Foods that are easy to digest and repair your gut
1. Bone Broth– contains amino acids that repair the gut and boost the Immune system naturally
2. Vegetables (ex. steamed broccoli, cauliflower & spinach)
3. Organic Meats (ex. wild caught salmon & organic chicken) only 4 oz. servings of meat with your meal
4. Fruits– blueberries and raspberries
5. Fermented dairy products – goat’s milk kefir and goat’s milk yogurt are high in probiotics
Lupies find more here about leaky gut and other natural remedies to treat lupus for good! Also, be sure to visit Dr. Axe’s webpage for other helpful articles to get you on your way to looking and feeling better DESPITE lupus.
Data released Tuesday by Aurinia Pharmaceuticalsmay bring exciting news for those of you living with a lupus-related kidney disease.
Lupus nephritis is one of the most severe complications of lupus affecting the kidney’s of as many as 40 percent of those with this chronic, auto-immune disease.
However, in the phase 2b study released Tuesday, nearly half of lupus nephritis patients treated with a low dose of voclosporin (along with standard of care) *achieved complete remission* after 48 weeks of treatment.
Read more about voclosporin and it’s affects on treating individuals with lupus nephritishere.
I thought that Mischa’s story could not only help spread a little lupus hope but bring about some Christmas Cheer also. I don’t know of anyone who doesn’t like to see a crusader triumph…
“Living with SLE Lupus, RA & Fibromyalgia. Lupus dx August 1999!! I control Lupus! Lupus does not control Me! I’m finally tapering off Prednisone down to 1 mg for 2 weeks. Then I’m off I’m changing my ways. A life change of healthiness is what I’m looking forward to. I Hate Prednisone it has helped in a flare up but hurt me more! Just wanted to share with everyone. Stay prayed up and healthy. Here’s a healthy Me!! #ihatelupus #findacure #sle #lupushurts #lupusawareness” Shared by Mischa Myers-Stewart