I had so many ideas come to mind when I ran across this post of the day. If you know me, and if you are aware of the way lupus makes me or any individual battling lupus feel, then you know that the word tender makes way for tons of options and angles to cover…. BUT, I chose to make this post an informative one. … Continue reading Tender Points And Tender Joints
Help tell the FDA what matters to people with lupus! Fill out the #lupuspfdd survey by July 1 for a chance to be a panelist or audience participant at the Lupus Patient-Focused Drug Development meeting on September 25 in the Washington, DC area. Visit lupuspfdd.org to learn more. Continue reading Will You Help?
It feels great to just sleep in…. to just lye in bed with not a care or place to go. It feels great to have a lazy day! Lazy Saturday ♡ Continue reading My Day Exactly
I saw this picture and instantly thought of my son Jayden. He is the reason why I get up each and every day EVEN WHEN lupus says nope and my body just wants to lay down and rest the day away. He’s my inspiration. He’s the someone I would love to hear say “because of you I didn’t give up.” I’m a lupus warrior, I’m … Continue reading It Only Takes One!
Sometimes I feel so bad for having to cancel on my friends. Sometimes I feel guilty for having to leave an event after only being present for maybe an hour. Sometimes I feel like a loner when I am unable to attend a birthday party, wedding or family birthday party. And Sometimes I feel so depressed when I am unable to have just a … Continue reading I’m Sorry
A lot of the times I allow lupus to determine what I can and cannot do with my life. I allow it to alter my mood, alter my relationships with my friends and family, and alter the way I go about living my life. But long are the days where I allow lupus to steal my joy. No more will lupus control the things that … Continue reading No, It Cannot…
Dear Lupus, UGH! Why must you wreak havoc on my hair? As if my body doesn’t suffer enough beatings from you, you had to go and pick on my hair too? Why must the gentle stroke of my hair from my brush turn into fit of hair fall? My bathroom is nicely decorated with zebra print and zebra fur rugs and I don’t necessarily think … Continue reading Dear Lupus
Can you imagine? For those of us living with lupus, this is our reality. For a future with #nolupus we must get to #knowlupus! Continue reading That’s Lupus